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Organizations that have expertise in psoriasis, as well as patient advocacy groups, can provide you with educational resources, offer practical tips for managing your daily tasks, and connect you with others who understand what you’re going through.
Whether you are newly diagnosed or have been managing the condition for years, these resources can help you navigate life with psoriasis.
National Psoriasis Foundation
The National Psoriasis Foundation (NSF) is the leading patient advocacy group for people living with psoriasis and other forms of psoriatic disease, such as psoriatic arthritis. Founded in 1967, the nonprofit organization is committed to finding a cure and improving the lives of people living with these conditions.
Along with providing educational information about diagnoses and treatment options, the NPF offers free assistance for people with psoriasis, their families, and their caregivers through the Patient Navigation Center. You can call their center directly with any question at all — from how to find a specialist to how to handle insurance issues — or submit your question online to receive a response within three business days.
The NPF also hosts a One to One program, where they can connect you by phone, email, or text to another person with psoriasis who understands what you’re going through. If you’ve had psoriasis for a while, you can also volunteer to become a One to One mentor.
One of the NPF’s major goals is to support research to find a cure for psoriasis — and in the meantime, improve the health of everyone living with psoriatic disease. They host various community events to connect people with psoriasis locally (or virtually) while raising funds to support these initiatives. You can find updates on Facebook, Instagram, and X.
American Academy of Dermatology Association
Founded in 1938, the American Academy of Dermatology Association (AADA) is the largest professional dermatology organization in the world, representing more than 20,500 experts from all areas of the globe. The organization is committed to spreading awareness and finding treatments for psoriasis, among other dermatological conditions, as well as enhancing patient care.
The AAD’s website offers information about psoriasis; tips for hair, skin, and nail care; dermatologist-approved insider secrets for managing the condition; and a searchable database to find a dermatologist near you who specializes in psoriasis. You can find updates from the AAD on Facebook and X.
Psoriasis Association
The Psoriasis Association is a United Kingdom–based charity dedicated to improving the lives of people with psoriasis or other forms of psoriatic disease. Over the years, the Psoriasis Association has donated millions of pounds to fund psoriasis research that aims to understand more about the causes, nature, and care of psoriasis.
The Psoriasis Association hosts an annual Psoriasis Awareness Week, as well as other initiatives and fundraisers to spread knowledge about psoriasis to a wider audience. They also provide educational information directly on their website about psoriatic disease, including how it’s treated and how it can affect your day-to-day.
Notably, the Psoriasis Association invites members of the psoriasis community to share their stories about what life with the condition is really like. They offer peer-to-peer support through their Facebook group and various forums, as well as an opportunity to connect with others, share experiences, and seek support.
Inspire’s Psoriasis Community Forum
Inspire is an online community that connects people with psoriasis or psoriatic arthritis (and their loved ones) to healthcare professionals. Think of it as a place where you can share health information, seek advice, and find support.
To participate, visit their Psoriasis Community forum, an online group for people with psoriasis or psoriatic arthritis that counts more than 300,000 people as members. You’ll need to create a free account to log in; afterward, you can read posts and comments and interact with other members.
PsoriaSis Collective
Ayesha Patrick founded the PsoriaSis Collective after experiencing a particularly bad psoriasis flare during the COVID-19 pandemic. Frustrated by the lack of available ressources for people of color, she started a Facebook support group, Sistas With Psoriasis, as a safe space to support women of color who are living with psoriatic disease.
Patrick shares her personal experiences with the world through her blog and connects directly with others through her Facebook group.
